A girl in Aldergrove girl with Systemic Juvenile Idiopathic Arthritis (SJIA) will be receiving Pharmacare coverage for Canakinumab. The drug costs $$19,000 per month, and until now has been financially out of reach for parents without additional insurance coverage.
Jaylene Prime and her family have reason to be ecstatic.
The 11-year-old Aldergrove girl has become the first… https://t.co/G901puYj8r
— The Hope Standard (@HopeStandard) February 21, 2018
Jaylene’s story is available online, here. Read the story on CHEK News “11-year old girl becomes first in B.C. to be approved for provincial coverage of effective, expensive juvenile arthritis drug”, here.
Sooke’s 6-year old Landen Alexa also suffers from SJIA, and his mother, Jillian Lanthier, has been requesting Pharmacare since 2017.
Lanthier has been turned down by Pharmacare three times so far, and is planning a fourth application.
Landen’s journey so far
- Where BC Pharmacare fails, community of Sooke delivers: Over $23,000 raised for Landen
- CHEK News: Supporters say Sooke boy is being treated unfairly (Video)
- Aldergrove girl with Systemic Juvenile Idiopathic Arthritis (SJIA) to receive Pharmacare coverage for Canakinumab
- Community rallies for local Sooke boy: Three other ways to
- Benefit concert “Remembering John” raises funds for Landen
- Collapsed veins means Landen could not get his treatment today
- Video: Mother of sick child confronts BC Minister of Health
- Premier stands by minister’s decision to deny Landen quality of life medication
- Open Letter: Mom requests reason for Pharmacare’s decision to deny a child effective pain meds
- A mother’s fight for her son’s pain relief continues, no end in sight
- OPEN LETTER #2: Horgan, Landen is back in the hospital. We haven’t heard from you yet.
- Video: Landen’s journey so far, and his fight for BC PharmaCare funding for canakinumab
- GoFundMe: Landen’s fight for canakinumab
- LETTER Sooke mom pleads for Horgan to hear: her child requires meds they can’t afford and Pharmacare doesn’t cover