–Jillian Lanthier, Sooke BC
Everyone, meet Landen! He is a sweet little boy who is almost 7 years old, and recently, in June 2017 diagnosed with a rare disease at Victoria General Hospital.
We are residents of Sooke BC, and are up against the B.C. government fighting for approval of a VERY expensive drug called canakinumab.
Canakinumab comes with a price tag of $19,050.00 per MONTH. That’s $228,000 per YEAR.
I posted my open letter to Premier John Horgan with Sooke PocketNews as it explains our situation from the beginning to currently.
I have sent a similar letter to Justin Trudeau & Adrian Dix, the Health Minister of BC, as well.
Also, please take a minute and sign this online petition, to fund canakinumab.
IF we get approval from the BC Government for canakinumab, I will donate these funds raised to Victoria General Hospital Paedeatric “Child Life” department who plays a large role in Landen’s life, and ongoing hospital stays.
- LETTER Sooke mom pleads for Horgan to hear: her child requires meds they can’t afford and MSP doesn’t cover
SPN Policy Statement: Sooke PocketNews supports all fundraisers affecting residents of Sooke, without prejudice. We ask that people keep comments positive and constructive as the assumption is that people doing the fundraising are dealing with a life crisis. If you do not support this or any fundraiser, we ask that you just move on. Comments are closely monitored. -Britt/SPN