Dear Adrian Dix, B.C. Minister of Health
I am once again writing you in hopes to meet with you and discuss Landen Alexa’s disease and his case. I am yet to receive any communication from yourself or your assistant.
With that being said, I know you’re aware of this urgent matter before you as I have heard from Sue Bouma on December 18th 2017 when Landen was denied, in which I chose to appeal.
On December 22nd 2017, Landen was denied for a third time, and no one informed me from your government.
I want to personally ask you: on what grounds are you denying my son this medication (canakinumab)?
Is it the cost? Your dislike with the pharmaceutical company? Is it because you have approved kids for this drug before and it hasn’t worked?
Trust me, I have considered cost. I have weighed out the pros and cons. I have explored every avenue in how to reduce the cost and split this medication with another child who desperately needs their childhood back as well.
I have also looked and compared current medication costs and our hospital stays, versus what our life with canakinumab could look like—which could eliminate our 3-5 hospital stays per month, and a potential need for a PORT inserted into Landen’s chest for IV access. That in itself Mr Dix, is a huge cost savings to the B.C. government, and allows my child to have his childhood back.
At this point, I am still asking for case-by-case approval and will continue to fight for a chance for my child. I am asking for a three month approval period to give Landen the chance he deserves. Upon the three month mark, I would be happy to reassess and move forward based on Landen’s medical professionals opinion.
I feel like I am not being unreasonable in my request. Everyone starts somewhere.
And please remind yourself, we didn’t choose this disease. We have no choice, no rehab to attend, no quick fix.
I am a firm believer that all people are equal, but yet this fight is not equal, is it?
BC Pharmacare automatically offers opioid addicted humans free access to medications to enable their habit. When you write me back, please address this, and answer what makes Landen and his fight less important or less-than-equal to an opioid-addicted B.C. resident.
Do YOU have children, or grandchildren? What would you do if you had to live this nightmare….?
What is your reason for denying Landen, Mr. Adrian Dix? I deserve to know.
Please have the courage and the respect to tell me to my face, and to Landen’s face.
I invite you into our life on January 12th 2018 at 9:30AM at Victoria General Hospital. Landen will be sedated and hooked up to an IV for treatment.
Furthermore; I feel I have been more than fair in waiting for you to acknowledge my child on a personal basis, I am now going to publicly request a favour from you Mr Dix.
I am requesting in the utmost polite manner for you as the honourable Adrian Dix, health minister of BC, to escalate Landen Alexa’s fight for canakinumab to the “Committee for Expensive Drugs.”
I understand you are the person with the authority to escalate Landen’s critical care case to the board and doctors of this committee, and it is my hope this is done immediately.
I eagerly anticipate your personal reply,
PS: I have also attached a picture of Landen, as I gave him his first dose of Chemo. I can’t articulate the words other than to say I feel like I have failed my son. What parent wants or chooses this for their child? Chemo is NOT a bandage option Mr Dix. Chemo won’t fix this on a long term basis.
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- Open Letter: Mom requests reason for Pharmacare’s decision to deny a child effective pain meds
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- OPEN LETTER #2: Horgan, Landen is back in the hospital. We haven’t heard from you yet.
- Video: Landen’s journey so far, and his fight for BC PharmaCare funding for canakinumab
- GoFundMe: Landen’s fight for canakinumab
- LETTER Sooke mom pleads for Horgan to hear: her child requires meds they can’t afford and Pharmacare doesn’t cover