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Tag Archives: Landen

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Where BC Pharmacare fails, community of Sooke delivers: Over $23,000 raised for Landen

Sooke PocketNews Posted on March 11, 2018 by Britt SantowskiMarch 11, 2018

From Margaret Ayres on Facebook: “Sabrina and I are very happy to announce that we deposited $19, 470.54 into Landen’s account today from our event on March 3rd. We raised more than enough for a one month treatment!! I am overwhelmed … Continue reading →

Posted in Breaking | Tagged Landen

CHEK News: Supporters say Sooke boy is being treated unfairly (Video)

Sooke PocketNews Posted on February 22, 2018 by Britt SantowskiFebruary 22, 2018

This video comes from the provider’s publicly-given embed code. Read the full article and see the original video on the CHEK website. Related … Continue reading →

Posted in Video | Tagged Landen

Aldergrove girl with Systemic Juvenile Idiopathic Arthritis (SJIA) to receive Pharmacare coverage for Canakinumab

Sooke PocketNews Posted on February 22, 2018 by Britt SantowskiFebruary 22, 2018

A girl in Aldergrove girl with Systemic Juvenile Idiopathic Arthritis (SJIA) will be receiving Pharmacare coverage for Canakinumab. The drug costs $$19,000 per month, and until now has been financially out of reach for parents without additional insurance coverage. Jaylene … Continue reading →

Posted in Breaking | Tagged Landen

Community rallies for local Sooke boy: Three other ways to

Sooke PocketNews Posted on February 3, 2018 by Britt SantowskiMarch 12, 2018

-Margaret Ayres (photo is of a young Landen Alexa, before the pain) Save these dates: February 10, February 14, and March 3 2018 By now everyone has probably heard about 6-year-old Landen Alexa and his mom Jillian. Landen has Systemic JIA … Continue reading →

Posted in News | Tagged fundraiser, Landen

Benefit concert “Remembering John” raises funds for Landen

Sooke PocketNews Posted on February 1, 2018 by Britt SantowskiFebruary 1, 2018

On Friday, February 16 at 8pm at Holy Trinity Anglican Church, 1962 Murray Road in Sooke, musician and promoter Phil N Rossner (aka Boz Roz) will be presenting his acclaimed one-man show Remembering JOHN, in support of Landen Alexa and … Continue reading →

Posted in News | Tagged Landen

Collapsed veins means Landen could not get his treatment today

Sooke PocketNews Posted on January 26, 2018 by Britt SantowskiJanuary 26, 2018

–With notes from Tanis Nielson-Rhoades Today treatment for Landen’s SJIA could not happen. Landen is a six year old boy from Sooke dealing with SJIA, an incredibly rare type of juvenile (childhood) idiopathic (of unknown origins) arthritis. It’s also called Still’s disease. … Continue reading →

Posted in News | Tagged Landen

Video: Mother of sick child confronts BC Minister of Health

Sooke PocketNews Posted on January 26, 2018 by Britt SantowskiOctober 11, 2019

Sooke mom Jillian Lanthier confronted BC Minister of Health earlier this week at a public meeting in Sidney, BC. CHEK TV captured the exchange, and provided background. This video comes from the provider’s publicly-given embed code. See the original video and … Continue reading →

Posted in News | Tagged Landen

Premier stands by minister’s decision to deny Landen quality of life medication

Sooke PocketNews Posted on January 17, 2018 by Britt SantowskiJanuary 17, 2018

This video comes from the provider’s publicly-given embed code. See the original video here. Related … Continue reading →

Posted in News | Tagged Landen

Open Letter: Mom requests reason for Pharmacare’s decision to deny a child effective pain meds

Sooke PocketNews Posted on January 8, 2018 by Britt SantowskiOctober 11, 2019

Dear Adrian Dix, B.C. Minister of Health I am once again writing you in hopes to meet with you and discuss Landen Alexa’s disease and his case. I am yet to receive any communication from yourself or your assistant. With … Continue reading →

Posted in Letter to the Editor | Tagged Landen

A mother’s fight for her son’s pain relief continues, no end in sight

Sooke PocketNews Posted on January 5, 2018 by Britt SantowskiJanuary 5, 2018

This video comes from the provider’s publicly-given embed code. See the original video and read their full article here. Jillian Lanthier’s fight continues. She posted the following on Facebook on January 3, 2018: I have tried to write and re write … Continue reading →

Posted in News | Tagged Landen

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