On December 8, SPN bought you the story of Landen and his mother Jillian Lanthier’s fight to have canakinumab funded by BC’s PharmaCare program. That’s a medicine for systemic juvenile idiopathic arthritis (JIA)—the only drug that will work for him—and it costs $19,050 a month. Other families in BC with extended health care have had canakinumab funded. That is not the case with this family. Canakinumab is approved by Health Canada. It’s just not currently accessible.
Here is Landen’s story in a five-minute video.
- Where BC Pharmacare fails, community of Sooke delivers: Over $23,000 raised for Landen
- CHEK News: Supporters say Sooke boy is being treated unfairly (Video)
- Aldergrove girl with Systemic Juvenile Idiopathic Arthritis (SJIA) to receive Pharmacare coverage for Canakinumab
- Community rallies for local Sooke boy: Three other ways to
- Benefit concert “Remembering John” raises funds for Landen
- Collapsed veins means Landen could not get his treatment today
- Video: Mother of sick child confronts BC Minister of Health
- Premier stands by minister’s decision to deny Landen quality of life medication
- Open Letter: Mom requests reason for Pharmacare’s decision to deny a child effective pain meds
- A mother’s fight for her son’s pain relief continues, no end in sight
- OPEN LETTER #2: Horgan, Landen is back in the hospital. We haven’t heard from you yet.
- Video: Landen’s journey so far, and his fight for BC PharmaCare funding for canakinumab
- GoFundMe: Landen’s fight for canakinumab
- LETTER Sooke mom pleads for Horgan to hear: her child requires meds they can’t afford and Pharmacare doesn’t cover
Other media coverage
- Global News: ‘He’s just in constant pain,’: Sooke mom’s desperate plea for son’s drug coverage – December 10, 2017
- CHEK News: Sooke mother desperate for BC to fund life changing $19,000 per dose drug for sick son – December 10, 2017
This video comes from the provider’s publicly-given embed code. Access the original video and article here.
- Change.org petition: Tell BCPharmacare: Support canakinumab therapy for children in need